Post Op Day 3

Mylah is alert and awake today! She is such a fighter and is progressing well.

She is on CPAP which is making her practice breathing on her own while still ventilated. If she forgets to breathe the CPAP will breathe for her. Basically she is breathing on her own. She is able to have her ventilation tube removed sooner (extubated) if she does well while on CPAP.

When we arrived she saw us and immediately started tearing up and frowning. She can't cry because of the tube in her mouth, but she tried. She also mouthed her tired/sad words...Na-Na. That is the hardest part of all of this, watching her become sad or frustrated and not being able to help! Once she is extubated she will be feeling much happier!

Her daddy held her hand to comfort her and she wouldn't let it go. It is so hard for us to not be able to hold her and rock her and tell her all of this is for her good. :(

So today's goal is to extubate and then we will move to feedings. They will manage her pain and we will all continue to pray that her body keeps healing.

Thanks for the love and prayers!

- Lara