This family is also special to us. They are a family who lives in the same town we do! We love Cayson and are grateful to see him growing and thriving. I am blessed to be good friends with his Tameran, his Mom, and am grateful she chose to share his story. Here's a bit about Heart Warrior Cayson:
Cayson is our third child. He was born in Cedar City Utah November 13th, 2002, after a long hard labor. They almost took him C section because his cord was wrapped around his neck. I finally was able to have him normally. After 2 healthy children we took it for granted that he would be healthy too. But after the pediatrician came in to check him out in the hospital, they wanted to do a echo in the hospital because they detected a heart murmur. We still weren't too worried about it. And they said they would call us with the results. When they called they said everything was ok. So we breathed a sigh of relief for a few days. But he was such a fussy baby, and he wouldn't nurse, and acted like he was in pain all the time. I knew something else was wrong, and kept taking him back to the doctor. The doctor thought I was over reacting, and I overheard him telling his nurse this one time. But mothers intuition told me to have him to check his heart one more time. So he said ok, and I'll never forget the look on his face. He realized he had not read the first echocardiogram right, and had made a Big mistake. He got us an appt up at Primary Children's hospital that same week! The cardiologist asked us if we were cousins,we said NO, and he said if not then because of our sons specific heart condition (supra valvular aortic stenosis) that he has Williams Syndrome. Williams Syndrome is a chromosomal defect where he is missing part or all of his 7th chromosome. They all have similar facial features, and it effects their mental function, and they are musically inclined, most of them are small, and they have "talk show host" personalities, they are very endearing children. He has been a joy to us! The health problems are worrisome ,because missing his chromosome effects the elastin in his body which makes his arteries tough, and as he grows they get smaller. He has many stenosed arteries going to many parts of his body. He has so many I wont name them all. The most severely stenosed artery is the descending aorta which is the long artery that goes through your stomach. And his renal artery which is the one going to his kidneys which in turn gives him high blood pressure, and could affect his kidney function at some point. The doctors say he has so many stenosis' that operations to put stents to open all of his arteries would not work, because he has too many. They see him every 6 months, and we are taking it a day at a time monitoring his blood pressure, and he is on 3 blood pressure medicines. About a year ago he was lethargic, and couldn't function, so we took him to the hospital, and after about a week in intensive care. They put a stent in to help open and return blood flow going to his brain. It was a success! He has been great since then! And a month after the surgery he went on a Make a Wish trip to Disneyland which was a highlight of our families lives. We love our Cayson, and feel blessed for every day that he spends with our family. We know his congenital heart disease will make his live shorter than we would like. But we are just grateful Heavenly Father entrusted this angel in our care for as long as we have him.
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