This Life

Going on almost two years since Mylah's diagnosis, it's sometimes easy for me to forget that our lives were turned upside down then. Anticipating the birth of Mylah's baby brother makes it all come back to me. Though he is heart healthy and doing really well, I still remember the feelings of anxiety and fear as we tried to comprehend the road ahead of us and the fight out little girl would endure.

Daily I am reminded how blessed we are to have Mylah here. Other heart Families who's children have her exact heart defect, haven't been so lucky. It's hard for me to read of their pain and not want to help. It's "this life", Heart Mom/Heart Family life that's made me more empathetic and sympathetic to those enduring their first days of diagnosis and pending surgeries. I am ever grateful for this life and the lessons it's taught me. I am full of heartache as precious Heart Warriors pass away, but also celebrate the miraculous life of those who have survived.

I have been reading a blog lately of a tiny precious girl named Capri. Born with Ebsteins Anomaly and also recently diagnosed with severe Pulmonary Stenosis, she's fighting for her life as I write this. For so many reasons, I have felt connected to this sweet girl and her Mom and family. 1) She's their third child and was born with a CHD. 2) She's a precious little girl Heart Warrior like Mylah. 3) Her Mom writes posts so similar to exactly what I felt and endured. 

I can't help but want to reach out and do something. I am praying with all I have for this sweet girl. 

Living now, after enduring so much of "this life" it's made my perspective change and increased my attitude of gratitude. How thankful I am for Mylah's continued health and growth. But I will always be fighting for, praying for, and supporting other Heart Families who are just beginning this journey! 

Pray and keep up with Capri's progress on their family blog: http://warefamily2013.blogspot.com

Hugs and love to you Kendra and to your precious family and sweet Capri!!