Saturday, February 8, 2014

CHD Awareness Week 2014 - Heart Warrior Angel Jr.

CHD Diagnosis: Tricuspid Atresia VSD ASD

Angel's Story:
Born June 30 2013
At birth they thought it was a harmless murmur, so they told to see his peditrican and that when they refer us to TCH to do a echo that where they found he had Tricuspid Atresia VSD ASD Agu. 18 2013 he was hospitalized that day to observe him. They told us he didnt need the first surgery he was doin good with out it that they want him wait to get the glen at 4months. Time past he was hospitalized twice for low oxygen level. They just gave meds on the third time we went for his cardiologist check up they relizes his oxygen level were too low so they told us this time he gone need surgery. I knew something wasnt right he was crying all night and not feeding well. He was too little for glen he was getting a extra surgery.He wasnt doing good that night so he was rushed to surgery that morning at 6am Sept.11.13 he got S/P BT SHUNT.  His first open heart surgery .. He recoverd well 6 days later he was already breastfeeding :) got to home a almost 2weeks later:) . On Dec. 30 13 he had his Glen he had a emergency surgery again . We had went for an MRI on the Dec. 26 but realize he was to blue and his Sat.  Were going low so they kept us in CVICU until his glen surgery he recovered quick but his blood pressure was too high so we had to watch for that he doing better growing and talking alot :)  for a 7 month old he one brave strong heart warrior:) it been crazy rollercoaster but I wouldn't change it.. we still have one more surgery but that when he 3-5years old so for now we be enjoying Jr. at home watching him grow!

- His mother Mary Donaciano

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