About 35,000 infants (1 out of every 125) are born with heart defects each year in the United States . The defect may be so slight that the baby appears healthy for many years after birth, or so severe that his life is in immediate danger.
Heart defects are among the most common birth defects and are the leading cause of birth defect-related deaths. However, advances in diagnosis and surgical treatment have led to dramatic increases in survival for children with serious heart defects.
SOURCE
From about 23 weeks on we knew that Baby Mylah had a two vessel umbilical cord.
Two vessel cords often don't cause any problems, but sometimes they do.
On Thursday when Mylah was diagnosed with TOF, I asked the specialist if it was related to her two vessel cord, to which she replied, "Yes."
Often they see heart and kidney problems in babies with two vessel cords.
A lot of babies have no problems at all.
Our precious girl is one of those rare cases in which her heart and kidneys are both affected.
Her heart is more severely affected than her kidneys, but they both bring worry none-the-less.
After this whirlwind weekend of diagnosis, Neil and I have partially come to terms with the fact that our baby will be born with a Congenital Heart Defect.
We are taking action already to support our little fighter in whatever comes her way.
We have researched, purchased CHD products to support awareness, and studied all we can to slowly prepare ourselves for her birth.
Nothing will be the same, this birth will not be normal, our lives after her arrival will forever change, but we will stay strong, pray often, and do His will as He directs.
We are truly thankful to have a knowledge of our Heavenly Father's plan and that no matter what happens, Mylah will be blessed and so will we.
We pray for other CHD Families and whatever they are going through.
There are so many, the statistics are staggering and as medical advances continue to improve we can only hope that our little miracle girl and others will see a long and happy life after their CHD diagnosis.
Two vessel cords often don't cause any problems, but sometimes they do.
On Thursday when Mylah was diagnosed with TOF, I asked the specialist if it was related to her two vessel cord, to which she replied, "Yes."
Often they see heart and kidney problems in babies with two vessel cords.
A lot of babies have no problems at all.
Our precious girl is one of those rare cases in which her heart and kidneys are both affected.
Her heart is more severely affected than her kidneys, but they both bring worry none-the-less.
After this whirlwind weekend of diagnosis, Neil and I have partially come to terms with the fact that our baby will be born with a Congenital Heart Defect.
We are taking action already to support our little fighter in whatever comes her way.
We have researched, purchased CHD products to support awareness, and studied all we can to slowly prepare ourselves for her birth.
Nothing will be the same, this birth will not be normal, our lives after her arrival will forever change, but we will stay strong, pray often, and do His will as He directs.
We are truly thankful to have a knowledge of our Heavenly Father's plan and that no matter what happens, Mylah will be blessed and so will we.
We pray for other CHD Families and whatever they are going through.
There are so many, the statistics are staggering and as medical advances continue to improve we can only hope that our little miracle girl and others will see a long and happy life after their CHD diagnosis.
I've felt compelled to return to little Mylah's blogspot several times since you prepared and posted this site. Each time, the spirit touches my heart to overflowing and tears rush down my cheeks as I listen to this beautiful music. Then in five or ten minutes I'm refreshed, filled again, comforted, and with great thankfulness to our Heavenly Father, brought to a realization of how blessed we are in this family to begin preparations to meet, yet another, special child of our Father. We should feel privileged that He considers our family worthy, especially you, Neil and Lara, to provide a home filled with love and faith to bring up His precious daughter, Mylah. Through trials and challenges we come to know the attributes of God. If we allow it, she along with two other special sons in this family, Norm and Jaxon, will be the instruments through which we can know Him better in mortality. Can you think of a more wonderful blessing? I cannot. Let us not miss this opportunity. Our Father's divine signature will be sent upon Mylah's birth. With much love and support.
ReplyDeleteMom H.