We had our orientation today at 3pm of the
Sunrise Children's Hospital NICU and PICU where Mylah will be born. Our tour was given by Mia Rios, R.N. She is the Perinatal Nurse Manager at Children's Heart Center Nevada. We met a few of the Nurses in both the NICU and PICU who were helpful in answering some of our questions about what we might expect during and after Mylah's birth.
Sunrise Children's Hospital NICU and PICU where Mylah will be born. Our tour was given by Mia Rios, R.N. She is the Perinatal Nurse Manager at Children's Heart Center Nevada. We met a few of the Nurses in both the NICU and PICU who were helpful in answering some of our questions about what we might expect during and after Mylah's birth.
This is a picture of the PICU. Here we met a family with a TET baby. They let us come in their room and see their baby boy (4 months) who had just come out of surgery. He had a BT shunt done following birth, but quickly outgrew it, and began regurgitating (perfusing poorly). So they flighted him down here from up north and performed emergency surgery. His chest was still open, and we could see his little heart beating away under the special transparent derma-gauze that was protecting the incision. It was a blessing to talk with them, to gather some sort of perspective of what we need to be prepared for. We are thankful to them for being so generous, and allowing us to visit with them in their room.
On Monday, the 19th, at 10:45am, we will return to the Children's Heart Center of Nevada to meet with Mylah's surgeon, Dr. Michael L. Ciccolo.
He wants to discuss with us, in detail, the options we will choose from for surgery. Every TET baby is different, so they will only be able to fine-tune her options following an Echocardiogram...minutes after birth. Her severity will determine whether surgery will be immediate, or 3-4 months down the road. In any case, surgery will be a must-have for her. We will be praying for strength to persevere down whatever road she decides to take us.
He wants to discuss with us, in detail, the options we will choose from for surgery. Every TET baby is different, so they will only be able to fine-tune her options following an Echocardiogram...minutes after birth. Her severity will determine whether surgery will be immediate, or 3-4 months down the road. In any case, surgery will be a must-have for her. We will be praying for strength to persevere down whatever road she decides to take us.
Wow, your a very strong woman. That's really nice of that family to answer questions and let you in on their story. It's gives you hope and makes you realize other kids go through this also and that she will be ok. Everything will work out. I'll be praying for you.
ReplyDeleteWow.. sending love and prayers.
ReplyDeleteLara,
ReplyDeleteI don't think we have ever met but I went to high school with Lindsey and Neil. I am so sorry to hear about this trial and I pray for you guys daily. We live in Carson City and I have a very good friend whose son was born with CHD and she gave me a bunch of great resources to pass along to you. She also said she would be more than happy to email or communicate with you if you are interested. My email is plthorley@gmail.com you can email me and I can pass all of that along to you. I hope that everything goes well for you all.
Portia (Olson) Thorley