Yesterday I took Mylah to her Cardiology appointment with Dr. Thomas. Before seeing him she was weighed, measured, had an EKG done and had her Pulse Ox taken. She weighs 14lbs 3oz and is 24 1/2 inches long. Her EKG was normal and her O2 Sats were at 82/83, which is perfect for her!
We waited a little bit and then finally saw Dr. Thomas. He did an ECHO of her heart and said that everything looks really good. Her Pulmonary Artery is at a 62 gradient and was at a 60 post-surgery. Basically this means that it is becoming a little more restricted in that area. Thankfully her shunt is doing it's job and looks good.
Towards the end of the visit, we got down to business and discussed Mylah's future surgery. He had originally wanted to get her to 1 year old before her full repair on her heart, but now he is saying that he wants to do it in the next few months. One, because we now live 3 hours away from the hospital and Cardiologists. Two, because she has been gaining weight at an amazing rate and is doing so well there. And three, because it is just better all around to do it, get it done, and have it over with. Well from our perspective anyway.
So what does that mean? He doesn't want to see her for 2 more months. He does, however, want her to have a Pulse Ox taken at the end of this month when she sees her Pediatrician. If it is below 80 he needs to know, if it is above she is fine. He will just see her at her next check up, do a follow up EKG and ECHO and see where we will go from there as far as scheduling her surgery.
Pre-Op procedure for heart surgery requires a catherization. This is where they will take a camera up her femoral artery and look at her heart and get an idea of how they will go about her repair. She will most likely have this done the same week as her surgery. So that will come up in a couple months too.
For now, Mylah is healthy, oxygenating very well, and growing at an amazing rate. Dr. Thomas said she is almost the weight of most 1 year old heart babies and she is only 4 months old. She is our superstar and we are so proud of her! We will see what the next couple of months will be like and hopefully figure out when her surgery will be after her next check up on April 2nd!
When “Thank You” isn’t enough
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