I am so sorry for leaving everyone hanging after our Goodbye PICU post! As soon as we returned home, life went back to full swing normalcy! I am frantically trying to catch up on our family blog as well as Mylah's here, along with wifely/motherly duties. I apologize for my delay in updating you on Mylah's progress since she's been home!
Mylah took her last dose of Methadone on Monday morning. The next couple of days she seemed ok, but has still never really stopped fussing around certain times. She seems slightly inconsolable, and agitated, but nothing like we saw at the hospital, and not making us think we would have to give her Methadone again.
She is loving being in her own atmosphere again, with her brother and sister, Mommy and Daddy, and Grandma and Papa H. She loves having her toys to play with and nice weather to enjoy days outside.
She is having a horrible time sleeping at night. I am not sure what the reasoning is, but she wakes about 5/6 times a night. It's like we have a newborn again! I am tired most days, but am realizing that after something as traumatic as open heart surgery, it will take her a little while to get back into her routine.
Her incision site and her chest look really well, as do her central line site and art line site. All is healing up nicely. She has a few horrible looking bruises from too many IV sticks, but those are slowly fading.
We still don't pick her up underneath her arms and are mastering the art of "the scoop" as we call it, really well.
We are so happy she is home and doing well. We are blessed beyond words for the numerous phone calls, texts, emails, drop ins, meals, letters, donations and love from everyone. We couldn't have gotten through this without each of you! Thank you!
And for those of you who have been waiting, here are some beautiful smiley pictures of our happy heart baby,
Love to you all!
- Neil and Lara
Mylah took her last dose of Methadone on Monday morning. The next couple of days she seemed ok, but has still never really stopped fussing around certain times. She seems slightly inconsolable, and agitated, but nothing like we saw at the hospital, and not making us think we would have to give her Methadone again.
She is loving being in her own atmosphere again, with her brother and sister, Mommy and Daddy, and Grandma and Papa H. She loves having her toys to play with and nice weather to enjoy days outside.
She is having a horrible time sleeping at night. I am not sure what the reasoning is, but she wakes about 5/6 times a night. It's like we have a newborn again! I am tired most days, but am realizing that after something as traumatic as open heart surgery, it will take her a little while to get back into her routine.
Her incision site and her chest look really well, as do her central line site and art line site. All is healing up nicely. She has a few horrible looking bruises from too many IV sticks, but those are slowly fading.
We still don't pick her up underneath her arms and are mastering the art of "the scoop" as we call it, really well.
We are so happy she is home and doing well. We are blessed beyond words for the numerous phone calls, texts, emails, drop ins, meals, letters, donations and love from everyone. We couldn't have gotten through this without each of you! Thank you!
And for those of you who have been waiting, here are some beautiful smiley pictures of our happy heart baby,
Love to you all!
- Neil and Lara
She looks great!
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